Ireland Is So Close To Treatment
When our daughter, Ireland, was 8 months old she was diagnosed with a devastating mutation on the CACNA1A gene. This single letter change on her DNA has a toxic gain of function effect, causing her brain cells to die. An organization called N-Lorem is developing a treatment to correct her genetic mutation at no cost to us. The medicine will be administered via spinal injection every one to three months. The hospital costs associated with treatment administration are not covered and projected up to $250,000 per year.
The most humbling question we are asked about Ireland is "how can we help her?" Your prayers for Ireland have been the most powerful armor in fighting this battle against her disease. Our biggest prayer for a pathway to treatment for Ireland has been answered. If you would like to support her hospital costs not covered by insurance, we would be forever grateful.
Please visit www.irelandsarmor.com for more information
To avoid transaction fees with larger donations, please contact kasey@rarevillage.org.
All donations are tax deductible through our partnership with Rare Village, a nonprofit organization who's mission is to empower families in their work to pursue treatments and cures for rare childhood disease. Any funds in excess of Ireland's hospital costs will be used to find treatments for similar nano-rare childhood diseases.
