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 CureOTCD

Help accelerate research to cure paediatric OTCD: Ornithine Transcarbamylase Deficiency.

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Rare Village Foundation is a 501(c)3 tax-exempt organization, and your donation is tax deductible within the guidelines of U.S. law. Please keep your receipt as your official record. We'll email it to you upon successful completion of your donation.

Our Mission & Vision

Our Mission: Find a cure for early onset Ornithine Transcarbamylase Deficiency (OTCD). Advocate for individualized treatment options beyond standard of care.

Our Vision: Children with OTCD will be diagnosed immediately after birth and treated promptly in accordance to their specific variant so that they can live a healthy life, free from metabolic crises.

Our Values: Our work depends on meaningful collaborations with various stakeholders, innovative approaches to problem-solving, strong leadership and targeted therapies (mutation-specific).

Current Research Focus: please visit our website, or watch our video to learn more about our current research projects that we are investing in, including a drug repurposing study and stem cell therapy approach to cure OTC Deficiency.

Frequently asked questions