Project PMM2-CDG

At Project PMM2-CDG, we are committed to finding a cure for those affected by PMM2-CDG. Every single donation will go straight to research as we build the miracle for our children.

What is PMM2-CDG?

PMM2-CDG is one of 190 congenital disorders of glycosylation which are rare, inherited metabolic disorder that affects glycosylation, an essential process for nearly every cell and organ.

Children with PMM2-CDG often face developmental delays, low muscle tone, movement problems, seizures, and potentially life-threatening complications affecting the heart, liver, or brain.

There are no FDA approved medications for PMM2-CDG, and treatments are only supportive in nature.

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{{ Rare Village }} is a 501(c)3 tax-exempt organization, and your donation is tax deductible within the guidelines of U.S. law. Please keep your receipt as your official record. We'll email it to you upon successful completion of your donation.

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Building The Miracle

Imagine being told there's no medicine, no roadmap, and very little funding to help your child live a better life. That's the reality for families faced with a PMM2-CDG diagnosis. This is our reality.

There is no cure for PMM2-CDG. No treatment that can fix what’s broken. As a parent, that’s the hardest thing to live with—knowing your child is suffering, and there’s nothing you can do to take it away. But the one thing we have is HOPE.

Please consider donating to PMM2-CDG research.

Because every child deserves a chance at a full life.
Because we believe a cure is possible.
Because your gift could change everything.
Help us build the miracle, we will leave no stone unturned.

Thank you—from the bottom of our hearts.

Sincerely,
Parents who refuse to give up