Please help change the lives of those living with Emery-Dreifuss Muscular Dystrophy
While any donation helps and is appreciated, serious progress takes serious funding. Please consider a recurring or higher-impact donation.
cureEDMD is operating under the fiscal sponsorship of Rare Village Foundation, a 501(c)(3) nonprofit, to provide tax deduction benefits to our donors. Your donation is tax-deductible within U.S. law guidelines. 100% of the funds provided to Rare Village on this donation page go directly to cureEDMD. Please email us at info@cureEDMD for more information.
About cureEDMD
cureEDMD is a patient and family-led, scientist-supported foundation to advance research into evidence-based interventions for Emery-Dreifuss Muscular Dystrophy, a genetic disease marked by life-altering musculoskeletal weakness and contractures and cardiac arrhythmias that can cause sudden death or debilitating strokes. Our mission is to foster collaboration between patients, families, researchers, and drug developers to enable effective treatments that improve the lifespan and quality of life of affected individuals. Please help create a better future for those affected by EDMD.