Cure DHDDS is under fiscal sponsorship through Rare Village Foundation. Rare Village Foundation is a 501(c)3 tax-exempt organization, and your donation is tax deductible within the guidelines of U.S. law. Please keep your receipt as your official record. We'll email it to you upon successful completion of your donation.
Cure DHDDS
Cure DHDDS is founded by parents of children diagnosed with a DHDDS gene mutation. We are not scientists or medical professionals but parents trying to find the best way of helping our children. Our mission is to support families diagnosed with DHDDS gene mutations, help drive research into these little-known mutations, and help find treatments so that those affected by variants in the DHDDS gene can lead the best life possible. Our vision is a world where there is a cure for everyone with a DHDDS variant.