Yes, we’ll send a receipt to the email address you provide when donating. The receipt will include your donation details, such as the date, amount, and any beneficiary information.

Moving Towards a Cure Challenge—30 Days for $30

Q: Is my donation secure?

Yes. Your security and privacy is our highest priority. We use industry-standard SSL technology to keep your information safe and secure.

Q: How is my personal data handled?

Your personal data is processed in accordance with our privacy policy and also in accordance with the privacy policy of GoFundMe, our website partner.

September is Dystonia Awareness Month, and you're invited to join the Moving Towards a Cure Challenge—a month-long movement fundraiser supporting the KMT2B Dystonia Foundation. Whether you walk, roll, dance, stretch, swim, garden, complete physical therapy, or simply move in the way that's right for you, every movement makes a difference. This challenge is for all ages, all abilities, and every level of mobility because movement looks different for everyone.

Why We Move
Together, thousands of small movements create lasting change.

Every registration and every dollar raised helps fund critical KMT2B-related disorders research, support families living with KMT2B related disorders around the world Increase awareness of dystonia, and moves us closer to better treatments—and ultimately, a cure.

How It Works
1. Join the challenge by donating $30 or more.
2. Move Every Day in September in whatever way works for you.

Your Participant Toolkit
Download our official September calendar featuring 30 fun and accessible daily movement ideas.

KMT2B is under fiscal sponsorship through Rare Village Foundation which is a 501(c)3 tax-exempt organization, and your donation is tax deductible within the guidelines of U.S. law. Please keep your receipt as your official record. We'll email it to you upon successful completion of your donation.

Frequently asked questions

Is my donation secure?

Do I get a receipt?

How is my personal data handled?

KMT2B Dystonia Foundation Mission Statement

KMT2B Dystonia Foundation aims to accelerate awareness, advance treatment, and bring hope to every child and family affected by KMT2B dystonia.

We are moving towards a cure by:

Developing a secure, centralized patient registry to inform clinical research and trials.

Funding innovative research focused on KMT2B dystonia and related neurological pathways.

Supporting the repurposing of existing therapeutics for faster, more accessible treatment options.

Building a strong, connected community to support and empower parents and caregivers.

This mission reflects our commitment to urgent progress in research and real-world impact for families facing this rare and life-altering diagnosis.

From isolation to information — for every KMT2B family.