NPBelieve

About NPBelieve

Nolan: Born Fighting, Still Fighting

Nolan Paul Boulter was born on February 3, 2018, blue and seizing — rushed to a level IV NICU where he fought for every breath. At just 17 days old, he was diagnosed with KCNQ2 Developmental and Epileptic Encephalopathy — a rare, severe neurological disorder.

Today, Nolan is blind, nonverbal, and fully dependent on caregivers. He can’t walk, sit, or feed himself. He endures seizures, dystonia, and frequent hospitalizations. Yet against all odds, he continues to fight — with grit, resilience, and joy. 

Nolan is more than his diagnosis. He loves the wind on his face at the beach, bike rides with mom, snow tubing, cuddles, and music. He lights up around his big brother Thomas — his best friend and fiercest protector. Thomas’s wish? “I just want my brother to get better.”

A Chance at Hope

Through relentless advocacy and research, Nolan’s mom found a path: a custom RNA-based treatment through n-Lorem, a nonprofit helping children with ultra-rare diseases. Nolan’s personalized ASO therapy is nearly ready — the science is here and now is the time where we need your help the most. 

What’s missing? Funding.

Every delay risks further, irreversible damage. This is not a pipe dream — it’s a race against time.

You can change everything.

You can offer hope. You can provide Thomas more time with his brother, and Nolan’s parents the chance to watch their boys grow together.
Every dollar is one step closer to giving Nolan the life he deserves. 

100% of your donations go to support Nolan's treatment and finding a cure for KCNQ2.

Be the miracle. Donate today.
For more information, please email NPBelieveCureKCNQ2@gmail.com