“I hate my tone! I just want to walk like my friends.” - Sophia
MCOPS12 is in several cases a severe, debilitating, and progressive neurological disease - which commonly affects many patients eyesight, mobility, and in some cases cognitive function. There are less than 100 patients known worldwide, yet no treatment or cure exists for this ultra-rare disease.
Turning Hope Into Action!
Our Research Focus:
Be one of our Champions for a Cure!!
1. GIVE whatever you can. No amount is too small
2. SHARE on your social media using our campaign hashtag #ChampionforaCure | #CureMCOPS12 | #RareDiseaseDay | #ACureforSophiaandFriends
3. FOLLOW us and our partner organizations on our social media: @CureforSophiaandFriends (Facebook), @ACureforSophia (Twitter) @CureMCOPS12 (Twitter, LinkedIn, Facebook) @AcureforSienna (Facebook & IG)
4. WORD OF MOUTH tell your friends and families about our cause
Where your money is going
A Cure for Sophia and Friends is currently operating under fiscal sponsorship of Rare Village Foundation, a 501(c)(3) nonprofit organization and your donation is tax-deductible within the guidelines of U.S. law. 100% of collected funds will be used to fund A Cure for Sophia and Friends initiatives.
If you prefer to mail a check please send to:
Rare Village Foundation
6808 Old Glory Ct. McKinney, TX 75071
Please notate A Cure for Sophia and Friends
If you prefer to make a wire/ACH transfer please contact kasey@rarevillage.org. Your donation allows us to work towards giving ALL MCOPS12 patients a CHANCE at a better life – that allows them to live without so many limitations – and make their OWN mark on this world.
Contact Us:
Have questions or want more information? Please have a look at our website:
https://www.ACureforSophiaandFriends.com
If you are a family member of a child or an individual with MCOPS12, and are not yet connected with our cause please reach out to us and/or join our support group on Facebook at:
MCOPS12 Patient Families - Support Group
Be a Champion for the Cure!
| #CureMCOPS12 | #ChampionForACure |#RareDiseaseDay | #CureforSophiaandFriends |