Rubinstein-Taybi Syndrome Foundation

Why Your Support Matters
Rubinstein-Taybi Syndrome (RTS) is an ultra-rare genetic condition that affects individuals from birth through adulthood. For families, a diagnosis often brings more questions than answers and too few places to turn for support, guidance, and hope. We are three parents raising children with RTS.

We founded the Rubinstein-Taybi Syndrome Foundation because we believe no family should have to navigate this journey alone. We know firsthand the challenges families face, the unanswered questions, and the need for greater connection, awareness, research, and resources.

By bringing families, clinicians, researchers, and supporters together, we can build a stronger community and create a better future for every person living with RTS.

Why Your Gift Matters
The Circle of Hope is more than a fundraising campaign. It is the beginning of a long-term commitment to change what an RTS diagnosis means for individuals and families.

Your support will help us:
Tie Families Together, Advance Research, Empower the RTS Community

What Your Gift Will Make Possible
Our inaugural goal of $25,000 will help establish the foundation, relationships, and resources needed to launch and grow The Rubinstein-Taybi Syndrome Foundation.

Funds raised will support our first steps:
Establishing the Foundation: Building the organizational and operational infrastructure.
Connecting Families: Developing a central network to connect.
Building Research Partnerships: Establishing relationships with clinicians, scientists, and research institutions to identify research priorities and opportunities.
Creating a Roadmap for the Future: Setting priorities and a long-term strategy for research, family support, education, and advocacy.

This first campaign is about more than reaching a fundraising goal. It is about building the foundation for lasting progress.

Join the Circle of Hope
Everyone who contributes to this inaugural campaign becomes part of our Circle of Hope: the founding community of supporters who believe in this mission and are helping bring it to life.

Every founding supporter matters. Every contribution moves us forward. And every person who joins this circle becomes part of our story from the very beginning. This is where our journey begins.

With your support, we can turn shared challenges into collective action, unanswered questions into research opportunities, and isolation into connection. Join the Circle of Hope today!

Tied Together. Advancing Research. Empowering the RTS Community.